FOI 2024-294

1.       Does your trust have a familial cancer service or services (for example, as part of a breast care team, family history clinic, or breast clinic) that manage people who could be at an increased risk of breast cancer because of a history of the disease or related cancers in their family? (Yes/No)

a)       If no, please answer question 2 - N/A

b)      If yes, please answer questions 3-5.

2.       If your trust does not have a familial cancer service, where do you refer patients who need to have their familial breast cancer risk assessed?

N/A

3.       If your trust does have a familial cancer service, could you please provide us with:

a)       The number of referrals your unit has received for assessment of possible familial breast cancer risk for each of the following periods:

b)      How many patients were identified as moderate risk* of breast cancer for each of the following periods:

c)       How many patients were identified as high risk** of breast cancer for each of the following periods:

* As defined by NICE in CG164 - Lifetime risk from age 20 of greater than 17% but less than 30%, or risk between ages 40 and 50 of between 3 to 8% 

** As defined by NICE in CG164 - Lifetime risk from age 20 of greater than 30%, or risk between ages 40 and 50 of greater than 8%, or a 10% or greater chance of a gene mutation being harboured in the family

Unfortunately, the information requested is unable to be provided.  The Trust does not have this information readily available and to obtain all of the required information would require a manual search which would take in excess of 18 hours as specified under Section 12 of the Freedom of Information Act.  

What we can tell you, is that we currently have the following patients in our service: 

Identified as moderate risk of breast cancer and undergoing annual mammograms = 514

Identified as moderate risk of breast cancer not yet reached the age to begin annual mammograms =208

Identified as high risk of breast cancer and undergoing annual mammograms = 277

Identified as high risk of breast cancer not yet reached the age to begin annual mammograms = 41 

4.       Which services do you offer to patients who are assessed as being at increased risk?

5.       For people referred into your family history service, does your unit have any additional inclusion criteria it uses to determine who can receive different types of support, in addition to the eligibility criteria outlined in NICE CG164 guidance, and if so, what are those criteria for: