Parent/Carer information
Blackburn with Darwin: bwdmedseccnp@elht.nhs.uk
Burnley/Pendle: bandpmedseccnp@elht.nhs.uk
Hyndburn/Ribble Valley: hrvrmedseccnp@elht.nhs.uk
Enquiries for children being assessed via the Children’s Development Centre (CDC): 01282 803646
ADHD |
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ADHD Northwest |
Support for children and families |
01254 886 886 |
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ADHD Foundation |
ADHD charity |
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ADDitude |
Online advice regarding ADHD |
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Help Guide |
Online resources regarding ADHD |
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ADHD Aware |
Online advice and meetings (face to face and zoom) |
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ADHD UK |
Advice and support for children and adults with ADHD |
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Lanc UK |
Support and assessment resource |
https://www.lanc.org.uk/adhd-management-asd-assessment/behavioural-management/ |
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Lancashire and South Cumbria ICB advice |
Advice and resources for ADHD |
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Methylphenidate for ADHD |
Medication information |
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Autism |
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ASD Pathway |
To check on progress of assessment |
01282 804393 |
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Autism Unlocked |
Online resource recommended by Action for ASD |
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Spring North |
Autism Support Service |
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Understanding Autism Northwest |
Autism resource centre
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01254 471500 |
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National Autistic Society |
Very good online resource |
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Spectrum of Light |
ASD group in Rossendale |
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Spectrum Gaming |
Online community for autistic young people |
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Pervasive Demand Avoidance |
Online advice |
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Autistic Girls Network |
Charity supporting girls with ASD |
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The A World UK CIC |
Charity supporting the autistic community |
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Autism Understood |
Website designed to support those with ASD to understand their diagnosis, and themselves more effectively |
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Molehole Mountain |
App to help children and young people with autism self-manage anxiety |
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Autism Alliance |
(Website under construction) |
https://www.autism-alliance.org.uk/national-agenda/policy-documents/ |
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Help Guide |
Helping your child with autism thrive |
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Bereavement support |
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Ruth Strauss Foundation |
Supporting families with a child facing the death of a parent |
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Winston’s Wish |
UK’s childhood bereavement charity |
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Milly’s Smiles |
Bereavement support |
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Disability support |
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Contact |
Support and advice for families of children with a disability |
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SEND IASS |
Advice regarding children with Special Educational Needs |
0300 1236706 |
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SOS!SEN |
Small charity offering independent, legally based advice on SEN to parents and carers |
Term time helpline: 0208 5383731 |
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Designated Clinical Officer Service |
Support families of children with SEND with accessing NHS health services |
01254 612722 or 07973 963565 |
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Lancashire Social Care |
To request additional support for children with disabilities |
0300 1236720 |
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LCFT Health Facilitation Team |
Supporting people with learning disabilities to access health care |
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Paediatric Learning Disability Team |
Advice and support for parents and carers of children with moderate or severe LD |
01772 520202 |
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Team Rise, Burnley |
Supporting people with learning disabilities and autism across East Lancashire |
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Lancashire SEND Partnership |
Services available in the local area through Lancashire County Council |
https://senddirectory.lancashire.gov.uk/kb5/lancashire/directory/home.page |
Mental health support |
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East Lancashire Healthy Minds |
Mental health advice, guidance, and directory |
01282 644700 |
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Mindsmatter - Lancashire and South Cumbria NHS Foundation Trust |
Work with adults aged 16 upwards struggling with difficulties such as stress, anxiety, and depression |
01282 657268 |
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ELCAS in the community |
Parents and school can refer for CAMHS support |
https://www.healthyyoungmindslsc.co.uk/home/pennine-lancashire-camhs-self-referral
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Children and Young People’s Mental Health Coalition |
Resources and toolkits for children, young people, parents and carers |
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Place to Be |
Child and young people’s mental health charity |
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Maundy Relief |
Free services including counselling for adults and young people aged 11+ |
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Help Guide |
Online advice for a range of mental health difficulties, including PTSD, anxiety, stress and grief |
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Hub of Hope |
Mental health support database
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Sleep difficulties |
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The Sleep Charity |
Online sleep advice |
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The National Sleep Helpline |
Telephone advice by specialist trained sleep advisors |
03303 530541 Mon, Tues, Thurs 7pm – 9pm Mon & Wed 9am – 11am |
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The Teen Sleep Hub |
Online sleep advice for teenagers |
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Cerebra |
Sleep advice for children with neurodevelopmental disorders |
https://cerebra.org.uk/get-advice-support/sleep-advice-service/ |
Other charities and sources of support |
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Hibi |
Free care support app for families of children with developmental differences and health conditions |
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The Brain Charity |
Support for people with neurological conditions |
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The Child Brain Injury Trust |
Support for children with acquired brain injury |
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Tourettes action |
Advice regarding Tourette’s Syndrome |
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Visual processing difficulties |
Online information and eye exercises to support visual health and school success |
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Dyspraxia Foundation |
Advice and support for children with DCD |
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ARFID Awareness UK |
Advice regarding avoidant and restrictive food intake disorder |
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The Chatty Dietician |
Lead dietician for CAMHS, Northampton Health Care NHS Trust |
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BEAT Eating Disorders |
UK Eating Disorder Charity (including ARFID advice) |
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Endeavour |
ARFID Carer support group run by BEAT Eating Disorders |
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Birmingham Food Refusal Service |
Online courses and information leaflets regarding difficulty eating and sensory sensitivities |
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Growing Hands on Kids |
Online advice for sensory processing difficulites |
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Blackpool Council |
Sensory processing difficulties information for parents |
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Sensory Integration Education |
Qualified SI practitioners and advanced practitioners, as recommended by Royal College of Occupational Therapy
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https://www.sensoryintegrationeducation.com/pages/local-therapists |
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Sensation the Sensory Gym |
Family run, teacher led team of sensory needs practitioners. |
43a Market St, Church, Accrington BB5 0DP |
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Holistic Child and Family Therapy |
Sensory processing advice and support. |
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Kelly Mahler, Interoception Website |
Occupational Therapist offering advice regarding emotional regulation.
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OCD UK |
Charity supporting children and adults affected by obsessive-compulsive disorder. |
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The British Dyslexia Association |
Advice and support for dyslexia and dyscalculia. |
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Helen Arkell Dyslexia Charity |
Assessment and support. |
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FASD Group for Greater Manchester and Surrounding Areas |
Building a network for families affected by Foetal Alcohol Spectrum Disorder. |
FasdgreaterManchester@yahoo.com |
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Community Genetics Team |
Advice for families affected by genetic conditions. |
advice@communitygenetics.org.uk Anne Edington 07715651504 Aashiya Patel 07715 635771 |
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East Lancashire Down’s Syndrome Support Group |
Charity for families of children with DS. |
01706 217354 or 07899983544 |
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Child and family wellbeing service |
Families can self-refer via Talk Zone and contact directly for advice regarding available services. |
Family information service – 0300 1236712 Talkzone – 0800 51111 (text 07786 511111) Burnley Wood CFW – 01282 470707 (CFW also on Facebook) |
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ERIC |
Continence advice. |
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New Era, Burnley |
Offering support to families.
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Burnley HAF programme - free meals and activities for children eligible for benefits related free school meal children during the school holidays |
Provides activities for children and young people for 1 week at Easter, 4 weeks in the Summer and 1 week in the Christmas holidays. |
https://burnleyhaf.org.uk/under-12s/ |
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Burnley, Pendle and Rossendale Council for Voluntary Service |
Work with young people aged 8-18 and support them in finding the appropriate groups, support and activities. |
https://bprcvs.co.uk/index.htmlhttps://bprcvs.co.uk/children--families.html# |
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Gender identity
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Information provided by clinical psychology colleagues.
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https://www.allsortsyouth.org.uk/resources/toolkits-booklets-guides |
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Mermaids |
National service for trans children and their families. |
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Too good to go |
App with discounted bags of ‘surprise’ food.
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Recovery College |
Courses offered cover a range of topics linked to the five ways to wellbeing for anyone over 16y. |
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Phab |
Inspiring and supporting disabled and non-disabled children. |
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Talk to Frank |
24 hour confidential drug advice helpline. |
0300 1236600 |
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With you |
Free, confidential support to young people experiencing challenges with drugs and alcohol. |
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The Princes Trust
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Support for young people aged 16 – 30 to build confidence, get a job or start a business. |
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Rally Round |
Free online tool for support to those in need. |
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Child Exploitation and Online Protection |
Support for concerns regarding online abuse. |
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Childline |
Anonymous support for young people; online and on the phone any time. |
0800 1111 |
Useful websites |
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NHS website |
Signposting for a wide range of health conditions |
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Calm Harm App |
App |
Via NHS website www.nhs.uk
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Young minds |
Parent helpline and webchat |
0808 802 5544 https://www.youngminds.org.uk/parent/parents-helpline-and-webchat/
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Kooth |
Free, anonymous and safe support (11- 25) |
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Every Mind Matters |
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https://www.nhs.uk/every-mind-matters/supporting-others/childrens-mental-health/
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Lancashire Healthy Young People and Family Service |
We provide health visiting services, health advice (from antenatal through to the first 5 years of your child’s life) and school nursing services for 5 to 19-year-olds *
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0300 247 0040
https://lancsyoungpeoplefamilyservice.co.uk/
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Time to Change |
Mental health advice |
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The Mental Health Foundation |
Mental health advice |
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MindEd |
Free educational resource for children, young people and adult’s mental health |
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Self help |
CBT self-help and therapy resources |
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There are six designated Pay and Display car parks around Burnley hospital for patients and visitors to the Trust to use. These are:
Car park 1- Opposite Victoria Wing.
Car park 2 - Opposite the UCLan building.
Car park 3 - Outside the Lancashire Women and Newborn Centre.
Car park 4 – Casterton Avenue opposite the UCC department.
Car park 5 – Opposite Main Outpatients Department.
Car Park 6 - Opposite Area 7 main entrance.
Please ensure you have the correct change to pay for parking as the machines do not give change.
Disabled Visitors
Designated disabled parking areas can be found around the hospital.is
A pdf download is available via this download link, although please note that this is a downloadable PDF document and may not be in an accessible format. (0.7mb)
If you require this information in an alternative format or language, please contact: Familycarequality.safetyteam@elht.nhs.uk
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