FOI 2024-233

Q1. Please provide the total number of patients treated in the last 6 months for:

Time period 01/01/24 to 30/06/24 inclusive

·       Polycythaemia Vera (ICD10 code D45) - 12

·       Myelofibrosis (ICD10 code D47.4) - <5

·       Myelofibrosis (ICD10 code D47.4) patients aged 65 and older - <5

Q2. How many patients were treated in the past 6 months (for any disease) with:

Time period 01/01/24 to 30/06/24 inclusive

·       Ruxolitinib - 7

·       Fedratinib - <5

·       Momelotinib - NIL

Q3. How many patients were treated in the past 6 months for Myelofibrosis (ICD10 code D47.4) with:

Time period 01/01/24 to 30/06/24 inclusive

·       Ruxolitinib - <5

·       Fedratinib - NIL

·       Momelotinib - NIL

Q4. How many myelofibrosis (ICD10 code D47.4) patients has your trust diagnosed in the past 3 years?

8

·       Of these patients, how many were treated in the past 6 months with Hydroxycarbamide?  

<5

·       Of these patients, how many were treated in the past 6 months with Interferon therapy? 

Not provided at this Trust

·       Of these patients, how many have received no active treatment in the past 6 months?

5

Q5. Does your trust participate in any clinical trials for the treatment of myelofibrosis? If so, can you please provide the name of each trial along with the number of patients taking part. 

No, the Trust does not have any research patients for this.