As of 1 Jan 2024:
· Total population size served by Regional Board
East Lancs has a total population size of approx 565,000 (2022 LCC population data following 2021 census)
· Number of hospitals providing oncology services
One hospital – Royal Blackburn Teaching Hospital
· Total number of consultant haematologists employees; specialist haematology registrars employed; consultant haematologists specialising in multiple myeloma; haematology clinical nurse specialists employed and multiple myeloma clinical nurse specialists.
<5 Consultant Haematologists
<5 Specialty Doctors
<5 Junior Clinical Fellow
Plus plan for <5 Middle Grade post
<5 Specialist Nurses, plus <5 part time retire and return post
During 2023 (1 Jan – 31 Dec), please provide the:
· Total number of multiple myeloma (MM) cases diagnosed (Please state which code(s) were used)
27
· If known, how many people were diagnosed with smouldering multiple myeloma?
6
· How many in-person haematology-based consultation/telephone haematology-based consultations/ video haematology-based consultation took place for people diagnosed with MM?
The Trust is unable to provide a response to this question as the information cannot be extracted from the systems.
During 2023 (1 Jan – 31 Dec):
· Were multiple myeloma (MM) patients discussed/reviewed at a MM specific MDT or general haematology MDT?
General Haematology MDT
· How frequently did MDT meetings meet?
Weekly
· What percentage of MM patients diagnosed in 2023 were reviewed/discussed at a MDT?
All discussed at MDT
· Which professionals/disciplines are represented on MDT meetings for MM?
It is a General Haem MDT - so pathology, radiology, Haem Consultants, Oncology, CNS, MDT
· What supportive and palliative care services are available for MM patients?
For best supportive care patients are referred to the primary or secondary care palliative care team. Services are also available from two local hospices (Pendleside and East Lancashire). Another hospice offers day services (Rosedale).
There is our East Lancashire Macmillan Cancer Information and Support Service who also support patients and families during their cancer journey throughout.
ELHT also have a dedicated bereavement team.
